Our Warriors
ALFIE
From Ireland
Age 9
Diagnosed at Age 4
The middle child of an older brother and younger brother, Alfie always makes sure he is heard, by being the loudest of the house! He is a massive wrestling fan and loves the band, KISS.
Current Treatment:
- Steroids (18mg daily)
- Vitamins (Daily)
- Regular Infusions (every 12 weeks)
- Stretches (twice a day)
RYAN
From Ireland
Aged 11
Diagnosed at Age 3
Ryan is a massive lover of Lego and the Xbox. When he is not busy building something new or playing video games, he is spending time with his big sister, mum and dad.
Current Treatment:
- Steroids (18mg daily)
- Heart Medication (2.5ml Lisinopril daily)
- Vitamin D (Daily)
- Bisoprolol (1.25mg Daily)
- Stretches (Daily)
ELIAS
From Austria
Aged 10
Diagnosed at Age 1
Elias is an active boy who loves playing soccer, riding his bike and meeting his friend. He also has a love for cooking, he one day dreams of opening his own restaurant.
Current Treatment:
- Calcort (24mg Daily)
- Tamoxifen (20mg Daily)
- Ubiquinol (200mg Daily)
- Vitamin D
- Physio (twice a week)
- Stretches (Daily)
NIALL
From Ireland
Aged 8
Diagnosed at Age 3
Niall is a cheeky and funny kid, who loves playing football and wrestling with his brothers and friends.
Current Treatment:
- Stretches (Daily)
- Night Splints
- Vitamin D (Daily)
Harry
From England
Aged 7
Diagnosed at Age 6
Harry is a happy boy with a big personality, who is also very kind & caring. He loves spending time with his friends & family; especially building dens and playing pirates with his Sister Lucy. Harry also enjoys reading Dogman books, playing Mario and playing with his playmobile police sets
Current Treatment:
- Steroids (Daily)
- Multi-Vitamins, Omega Oils & Vitamin D (Daily)
Joseph
From England
Aged 8
Diagnosed at Age 8
Joseph is mad about UFC, WWE Wrestling , Liverpool FC & playing games on his PlayStation. He is a loving young boy who dreams of one day becoming an UFC Champion!
He has so much life and love to give.
Current Treatment:
- Stretches (Twice Daily)
- Physio (Daily)
- Vitamin C & D (Daily)
Jonas
From Austria
Aged 15
Diagnosed at Age 2
Jonas loves to meet friends in his virtual world. He also enjoys delicious food, specially prepared by his older brother. Jonas loves sweets too, like maccherons.
Current Treatment:
- 17.5mg Apresnislon (Daily)
- 20mg Tamoxifen
- Vitamin D & Creatin (Daily)
- Stretches (Daily)
- Physio (Weekly)
DREW
From Pennsylvania, US
Aged 9
Diagnosed at Age 7
Drew gets on with everyone he meets and is the life of the party. He is a big lover of camping, cooking and being a food critic! Most days you will find him gaming or watching YouTube videos; he loves being to chat with his friends from all around the world.
Current Treatment:
- An assortment of Antioxidants, Amino Acids & Vitamins
- Manual Stretching
- Night Splints
- Pemf/Far Infrared/Red Light Therapy
BOY A
From France
Aged 10
Diagnosed at Age 6
Boy A is a huge reader of all kinds of books, but when he is not reading he is playing video games.
Current Treatment:
- Coversyl for the Heart
- Vitamins
- Stretches (Daily)
MAX
From Germany
Aged 11
Diagnosed at Age 2
Max loves building lego creations all day and playing video games. When he's not doing that, he is busy running and being free outside.
Current Treatment:
- Deflazacort
- Vitamin D (Daily)
- Stretches (Daily)
JACO
From South Africa
Aged 11
Diagnosed at Age 7
Jaco is a active boy with an interest for fast cars, bikes, fishing and monster trucks! He is a strong kid with belief in the power of 5 stones; Love, Hope, Faith Family & Health
Current Treatment:
- Physio (Twice a Week)
- Horseback Riding (Once a Week)
- Steroids
- Vitamin D, Calcium & Omega Oils (Daily)
- Hydrotherapy
- Infrared Therapy
- Night Splints (Daily)
Criostái
From Ireland
Aged 13
Diagnosed at Age 5
Criostái is the youngest child and the only boy of the family; with 3 older sisters. He is also an uncle to his 3 year old nephew, who he loves to spend time with. He loves to have family movie nights & playing board games with his sisters! Criostái loves The Walking Dead, Marvel movies, playing on his PS5 & watching The Sidemen on YouTube.
Current Treatment:
- Carvedilol 3.125mg (Twice Daily)
- Steroid - Calcort 7.5mg (Daily)
- Ubiquinol 200mg (Daily)
- CoQ10 200mg (Daily)
- Fultium-D3 - Vitamin D 800IU (Daily)
- Stretches (Daily)
- Standing Frame (Alternate Days)
Jack
From Ireland
Aged 9
Diagnosed at Age 3
Jack is the most friendly, fun loving happy little boy. He loves school and playing with his friends, football, swimming and gaming.
Current Treatment:
- Steroids (Daily)