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Our Warriors

ALFIE

From Ireland

Age 8

Diagnosed at Age 4

The middle child of an older brother and younger brother, Alfie always makes sure he is heard, by being the loudest of the house! He is a massive wrestling fan and loves the band, KISS.

Current Treatment:

- Steroids (18mg daily)

- Vitamins (Daily)

- Regular Infusions (every 12 weeks)

- Stretches (twice a day) 

RYAN

From Ireland

Aged 10

Diagnosed at Age 3

Ryan is a massive lover of Lego and the Xbox. When he is not busy building something new or playing video games, he is spending time with his big sister, mum and dad.

Current Treatment:

- Steroids (18mg daily)

- Heart Medication (2.5ml Lisinopril daily)

- Vitamin D (Daily)

- Bisoprolol (1.25mg Daily)

- Stretches (Daily)

ELIAS

From Austria

Aged 10

Diagnosed at Age 1 

Elias is an active boy who loves playing soccer, riding his bike and meeting his friend. He also has a love for cooking, he one day dreams of opening his own restaurant. 

Current Treatment:

- Calcort (24mg Daily)

- Tamoxifen (20mg Daily)

- Ubiquinol (200mg Daily)

- Vitamin D

- Physio (twice a week)

- Stretches (Daily)

NIALL

From Ireland

Aged 7

Diagnosed at Age 3

Niall is a cheeky and funny kid, who loves playing football and wrestling with his brothers and friends. 

Current Treatment:

- Stretches (Daily)

- Night Splints

- Vitamin D (Daily)

DREW

From Pennsylvania, US

Aged 9

Diagnosed at Age 7

Drew gets on with everyone he meets and is the life of the party. He is a big lover of camping, cooking and being a food critic! Most days you will find him gaming or watching YouTube videos; he loves being to chat with his friends from all around the world.

Current Treatment:

- An assortment of Antioxidants, Amino Acids & Vitamins

- Manual Stretching

- Night Splints

- Pemf/Far Infrared/Red Light Therapy

BOY A

From France

Aged 10

Diagnosed at Age 6

Boy A is a huge reader of all kinds of books, but when he is not reading he is playing video games.

Current Treatment:

- Coversyl for the Heart

- Vitamins

- Stretches (Daily)

MAX

From Germany

Aged 11

Diagnosed at Age 2

Max loves building lego creations all day and playing video games. When he's not doing that, he is busy running and being free outside.

Current Treatment:

- Deflazacort

- Vitamin D (Daily)

- Stretches (Daily)

JACO

From South Africa

Aged 11

Diagnosed at Age 7

Jaco is a active boy with an interest for fast cars, bikes, fishing and monster trucks! He is a strong kid with belief in the power of 5 stones; Love, Hope, Faith Family & Health

Current Treatment:

- Physio (Twice a Week)

- Horseback Riding (Once a Week)

- Steroids

- Vitamin D, Calcium & Omega Oils (Daily)

- Hydrotherapy 

- Infrared Therapy

- Night Splints (Daily)